tag:blogger.com,1999:blog-3202508664406663918.post5451583245188042091..comments2023-10-20T09:28:23.506-06:00Comments on annie's in my heart: Change of PlansAmy Sabinhttp://www.blogger.com/profile/12617138995661777971noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3202508664406663918.post-50945336332655642822010-04-19T22:42:15.034-06:002010-04-19T22:42:15.034-06:00I will be there on the 2nd if you are still there ...I will be there on the 2nd if you are still there please let me know if I can do anything for you :) Ivy murphyConnor my little froghttps://www.blogger.com/profile/16519927097798662590noreply@blogger.comtag:blogger.com,1999:blog-3202508664406663918.post-1659859017114564972010-04-17T17:51:52.584-06:002010-04-17T17:51:52.584-06:00Amy, I am so sorry for the roller coaster ride you...Amy, I am so sorry for the roller coaster ride you and your Family have been through this past week. It sounds like you are in good hands of the Dr's and Staff. I will be thinking of you and praying for your Family. Please, if you need anything I am here!Ferran Familyhttp://ferranfamily.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3202508664406663918.post-48806437017169925992010-04-17T15:19:02.784-06:002010-04-17T15:19:02.784-06:00Best of luck! Our prayers and thoughts are with yo...Best of luck! Our prayers and thoughts are with you and your family!Rommel and Christyhttps://www.blogger.com/profile/11105666777483771614noreply@blogger.comtag:blogger.com,1999:blog-3202508664406663918.post-45881770668567708002010-04-15T12:20:49.829-06:002010-04-15T12:20:49.829-06:00I agree with Chrissie - the new CICU is fabulous. ...I agree with Chrissie - the new CICU is fabulous. The staff is great. Annie will be in good hands. We will continue to watch for updates and hopefully get in a visit soon! Good Luck!!Melissahttps://www.blogger.com/profile/06061186631450085342noreply@blogger.comtag:blogger.com,1999:blog-3202508664406663918.post-7757280199837659392010-04-15T08:38:56.526-06:002010-04-15T08:38:56.526-06:00sorry for the roller coaster rides. It's not v...sorry for the roller coaster rides. It's not very fun but comes with the whole heart world thing :0), I would get frusterated with the doctors/cardiologist/nurses/np's and everyone else involed all had a different story or evaluation of the situation. It only takes 1 good one to let you feel comfort and peace about your little one's situation. That is nice she is at PCMC. I thought she was all ready there ;0) The CICU wasn't there yet when Kylie was at PCMC I heard its fantastic though. If you want when you are at PCMC you can have a care conference, if you feel like your not getting the answers you would like, they get everyone together in one big room and make things clear for you. I would all ways try and be there for rounds in the morning so you could talk to all of them at once. Kylie had an MRI before her glenn, she did okay, but wasn't able to get her sats high enough so we went home on O2 until her surgery. It's a hard situation to be in. I felt so lost with Kylie and her surgery, I knew they were going to make her better and that she needed them to survive, but on the other hand I didn't want to see her suffer and be in pain. The staff at PCMC are really good to listen to you being Mom & Dad. I think as parents we know our babies better and sometimes people forget that. We are praying for you guys. Good Luck with surgery and the MRI<br /> If you need anything feel free to email me? bnctaylor@msn.com<br />Chrissie<br />mom to Kylie HLHSOne Happy Heart Familyhttps://www.blogger.com/profile/08047148321628568770noreply@blogger.com