Annie is doing well! After they closed her chest, she struggled some to keep her blood pressure up, but by that evening she had stabilized. She still has arrhythmias when she gets upset, but in general, they seem to be decreasing. Her bronchus has remained open and her lungs have shown gradual improvement every day. This is really good news and we are very grateful for how well she has done since her second surgery. Her recovery has been so much better this time around. It took her more than a month following the first surgery to reach the same level of recovery that she has reached following this surgery in about about a week. They are slowly removing lines and tubes, and hopefully we will be able to hold her soon. All eyes are again on the ventilator as we look to weaning her from it. Her ventilator settings are still quite low, and will not need to be adjusted much before extubation, but Annie is very weak. The focus is now on increasing her nutrition and helping her gain strength. The doctors have all expressed concern that Annie may not be successful in coming off of the ventilator as it is providing positive pressure that helps to stent open her airways. Of course, I am nervous about this and have known all along that this would be a very big hurdle for Annie. But, I am thankful for how far she has come and have hope that she will continue to make progress towards our biggest goal for her at this point: coming home to our family.
Thank you to all that have sent letters to Annie! I know that they will be a treasure to her some day. Thank you for your love and prayers for Annie and our family. This has been such a long journey, and it is far from finished, but you have stuck with us through it all. We really are so blessed.