ANNIE GRACE SABIN - March 30, 2010 - August 1, 2010

ANNIE GRACE SABIN - March 30, 2010 - August 1, 2010

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Tuesday, July 6, 2010

Still Fighting

Annie is still fighting to stay with us. This little girl has such a strong spirit! Her chest tube drainage has not decreased and we know that this, by itself, is not compatible with life. However, she is still alert and very aware of her surroundings. She watches anyone that approaches her bed very carefully and draws them in with her beautiful blue eyes. Even puffy and swollen, she is such a darling baby. It is hard to reconcile all of her normal baby behaviors with what is happening to her body. Yesterday, we requested to meet with the cardiologist that specializes in clots. We know that the doctors have exhausted all conventional means of dealing with this problem, but were hoping that they might be willing to look outside of "the box." Today, after much discussion, they approached us with one more idea. They feel that placing a stent in her superior vena cava could help reduce some of the pressure in her venous system and decrease the amount of fluid draining from the chest tubes. Placing it could prove to be difficult or even impossible. As always, this procedure carries a fair amount of risk to Annie. We are willing to take the risk involved, as the alternative is to stand by and watch her decline.

We have struggled to keep our spirits up during the last week-and-a-half as the doctors have lost all hope that Annie will survive. We are not in denial about how sick our daughter is, but we still have hope, and will hold onto that hope until she is taken from us. We understand the reality of what is happening to Annie, but also know that if it is God's will for her to stay with us, He can overcome all obstacles. It is not our desire to change His will, only to respond in faith to whatever we are called to pass through.

18 comments:

  1. Amy,
    My Abby refused to accept your last post. She convinced me to continue praying for the miracle Annie so badly needs. She also held a personal fast for Annie on Fast Sunday, despite my requests for her to not fast since her body is still healing from her OHS. She has ABSOLUTELY refused to give up hope for a miracle and asked me to not give up yet either. We are still praying for Annie's miracle in our house thanks to the bond that these heart children feel for each other. I pray about 100 times a day for little Annie...that even though the doctors feel she is past the point of help...God knows how to heal her. We are asking for her body to be healed enough to sustain her beautiful life. We LOVE you guys so much and will continue to support you with our love and faith!!!

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  2. I'm so glad that you posted. I know you don't have much time as you want to spend it all with her. Praying for you all!!!

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  3. I too fasted for Annie this past Sunday and haven't stopped thinking about her since I last saw her and you. We continue to pray nightly for Annie and your beautiful family!

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  4. Amy,

    I am very impressed with you and your husband in never giving up. Some things are out of our hands, but as long as we do have a say and never quit, great things happen. Annie has inherited her strength from her earthly parents as well as her heavenly parents. I was so excited to read this post. Don't worry, we will not give up on Annie in our prayers either. Much love.

    Teala Wilson :)

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  5. She is a fighter and so are you! It is no wonder that she continues to cling to life, she has such a valiant family.
    I am glad to read that she is still fighting and I especially pray that the doctors will be inspired to do whatever they can for little Annie.
    My Prayers continue . . .
    (HUGS)
    Carolyn - IHH

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  6. Always HOPE. You are her best advocate. Thank you also for posting. You have so much courage and give those of us strength when we need it.
    ~Tiff

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  7. I checked on your blog earlier today to see how little Annie was doing. What an amazing little lady!! We keep praying for you and feel humbled to witness the hand of God in her life.

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  8. We are praying for Annie nightly. Our thoughts and prayers are with your family.

    Hugs,
    Mike & Rebecca Patton
    Intermountain Healing Hearts

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  9. She is definately a fighter, I remember hearing you say that the day I met you in her room. I've prayed for her ever since, knowing she has a valiant spirit that won't give up. May the Lord continue to bless you in this difficult time...
    Kerry

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  10. I tried to respond to your last post, but I just couldn't - it didn't feel right yet. We are still praying for you - thanks for the update!

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  11. We are praying for your sweet family,and thanks for letting us be a part of annie's journey. Murphy

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  12. I fasted as well for Annie on Sunday. You are in my thoughts and prayers constantly. I'm so glad that Annie is still fighting, don't give up hope! You are amazing strong parents and I'm sure that Annie is drawing from your strength.
    Hugs,
    Hollie, Ben and Elaina

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  13. Amy and Cameron, I just wanted you to know you and your family are in our prayers. I tried to leave a comment yesterday, but I guess it didn't work. I am constantly amazed by your strength, faith, and courage. I have followed your blog and my emotions are constantly on the surface when I read it because I can't even begin to imagine what you've all gone through with your sweet little one. The Wood family is praying for you. love, Michelle Wood

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  14. We're continuing to pray for you. My son Jax includes "little miss annie" in his prayers.

    Jen Anderson

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  15. I found your blog from another heart mom. Please know that your family and your little Annie are in our prayers.

    Angela VanShaar

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  16. Amy
    We have prayed for you and Annie daily and will never stop believing for a miracle. Let me know if I can do anything for you including getting you in touch with the surgeons in Boston. I love PHCH but sometimes you have to look at other options . I know the chief surgeon let me know

    Ivy

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  17. Amy, your posts bring me to tears. My thoughts and prayers are with Annie and your family. I know that whatever the Lord has in store for Annie will be what is best for her. You are so strong. Please know I am thinking about you.
    Love
    Jen

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  18. I am so sorry to hear about how your sweet baby is declining. She truly is such a gorgeous little girl.

    We know all too well how hard this road is. Her pictures look so similar to our Gracie. I hope that you will feel lifted up by all the prayers that are being given in your behalf. Prayer and faith are the only things that carried us through.

    We will continue to think of your family and keep you in our prayers!!

    Michele
    (Gracie's Mom)

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