ANNIE GRACE SABIN - March 30, 2010 - August 1, 2010

ANNIE GRACE SABIN - March 30, 2010 - August 1, 2010

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Friday, July 16, 2010

Update

Not much has changed since my last post, but I figured I was due for an update. Annie is a little less swollen and much more comfortable than she was last weekend. I am so grateful for this as we all struggle the most when she is miserable. She is still draining too much fluid, and while there are many theories as to why, the bottom line is that nobody really knows. She was again discussed in the conference on Wednesday and the results of that meeting are as follows: The surgeons here do not feel that there is anything more that they can do for Annie. Some people in the meeting thought that maybe we should send her work-up to a different hospital in the country so that another team could weigh in on her condition. We felt good about this, and today, her file is being sent to Stanford. We will hopefully hear back from them next week. While I am so grateful that we are able to pursue other opinions, the thought of actually taking Annie to California scares me. If it comes to this, it would be a very difficult challenge for our large family, but I trust that with our Heavenly Father's help, we will be guided in any decisions that might need to be made. The doctors here want to try a couple of different medications, each one a bit of a shot in the dark, but certainly worth a try. The team also discussed our decision to "stay the course" when some feel that this is hopeless. It sounds like many opinions were expressed, but the prevailing sentiment was that while they are obligated to be honest with us regarding Annie's condition, it is not their job to decide when it is truly hopeless. The team of doctors on this week has been wonderful in this regard. I am so thankful for this, as the hardest days are those when I feel pressured to make a decision that I am not comfortable with or feel unsupported in the decisions that we do make. We have been introduced to the palliative care team here and they have been such a blessing in helping us to communicate with the ICU doctors about our wishes regarding Annie's care. Really, this hospital and its' staff have been amazing- such good people that all want what is best for Annie. We are blessed to be in their care. We are also blessed to be in the care of so many who have offered love, support and prayers to our family. Thank you for this as I know that it is where I get the strength to do this every day.

8 comments:

  1. Though I have faith in the staff at PCMC, sometimes it takes a fresh set of eyes to look at a puzzle to put it together, so I think it's encouraging that they are willing to share her info with Stanford for review.
    Sending my love and prayers.
    HUGS)
    Carolyn - IHH

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  2. Amy

    Can I offer the information for the boston childrens hospital too!!!! maybe if two hospitals look at her it might give some new direction!! Please let me know since my mom has close connections with boston and they are known for their new reserch for heart babies. Please let me know I can email it to you or email me at smurphy8507@hotmail.com
    sending our love
    Ivy

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  3. P.S

    If and when you need help getting to California let me know I can help you get there

    Ivy

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  4. Hi, My name is Andrea. I'm Cara Sabin's (Annie's cousin) friend. Cara has told me a little about Annie, and I just wanted to let you know that I am praying for her. I am so amazed by your great faith. It has truly strengthened my testimony. I feel that I can somewhat relate to you. I have a 5-year-old sister who stopped breathing soon after she was born. She had brain damage and was in the hospital for two weeks. She cannot walk or talk, but her smile can light up a whole room. I thought two weeks in the hospital was a long hard time, but when I see your hope after two months, I am amazed. Your trial has helped me count my blessings. You are an inspiration to me. You do not know me, but I wanted you to know that I wish the best for your family. You have my heart, my hope, and my prayers.

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  5. I'm so glad they are seeking more help and knowledge from the many skilled doctors out there. If Annie does need to come to California you can stay with us, your whole family. You know I can handle it and I would love to be of any help possible. I have so wanted to be able to help all this time and living so far away I cannot. I have been grateful that Becca was there to help a little. Please do not hesitate to take me up on my offer. I pray for Annie everyday and for your family to have strength. We love your family.

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  6. I agree with Carolyn. PCMC doctors are amazing but having new people, with a new perspective look at the case is GREAT!

    I don't know you but if there is anything I can do to help you please don't hesitate to ask.

    Nikki.Sjoblom@gmail.com

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  7. Thinking about you guys! Praying for you and Annie. I sent you an email with my info a couple weeks ago if you need to talk.

    Becca-Ellie's mom

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  8. Thinking of your sweet family always. What a strength Annie is. I am amazed at the faith and the strength your sweet family has. We're praying for you.

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